Cystic Fibrosis - What's New

ACFCQ/Information Section/
Updated: June 8^th, 2010

On behalf of the directors of the Adult Cystic Fibrosis Committee of Quebec, it gives me great pleasure to introduce the revamped version of the ACFCQ Web site. Although it was developed to meet the specific needs of adults with cystic fibrosis (CF) in Quebec, we hope that the site becomes a source of information and inspiration to people around the world who are concerned with the psychosocial and medical realities of adults with CF.

Welcome all!
Laval de Launière, Director General

News

New clinical research project at the CHUM (In french only)
... The cystic fibrosis research team at the CHUM is looking for patients who want to participate in a research project to evaluate a new anti-inflammatory drug.

Presentation “Comment se motiver pour mieux vivre” [how to motivate yourself to live better] (In french only)
... A DVD of the presentation is available free of charge to anyone who is interested. (In French only)...

Énergie Cardio–ACFCQ Partnership (In french only)
... Énergie Cardio is holding a draw for seven free memberships valid in over 70 Énergie Cardio centres in Quebec. The draw will be held on June 28 at the ACFCQ’s head office. To participate, just fill in the entry form. ...

Everything you need to know about clinical trials (In french only)
... Your participation in clinical trials could speed up the evaluation process aimed at determining the effectiveness of a treatment, as well as its approval, marketing and accessibility. ...

Facebook (In french only)
... Attention Facebook fans: Did you know that the ACFCQ now has a Facebook page? ...

The Canadian Cystic Fibrosis Foundation's awareness campaign
Watch and listen to the awareness campaign.

CPAFK Express

Click here

The summer edition of CPAFK Express (May 2010) is now available. (In French only).

This issue features information on clinical trials, a trip to Venezuela, Employment Insurance sickness benefits, the Régie des rentes du Québec, parking stickers for persons with disabilities, a new research project at the Hôtel-Dieu pavilion of the CHUM, scholarships and the 2010 Annual General Meeting and conference.

SVB

Click here

The 2010 edition of SVB is now available.

Message From the Editor
Illness, Poverty and Social Exclusion: the Silent Scourge
A Word From the Chair
For You . . . with You
Letters to the Editor
Forceful, but Necessary Messages
A Message of Hope That the “Drowning” Will Stop
When Advertising Hurts
Morbid Ads That Take Our Breath Away
Interview
Sleep and Sleep Disorders
Reflections
Everything Starts with Your Inner Self
Now That We’ve Grown up
Health
The Intestines, an Important Organ
Physiotherapy
The Importance of Physical Activity in End-Stage Cystic Fibrosis
Psychology
Breaking Bad News
Hemoptysis – Coping with the Stress
Research
Cystic Fibrosis Research: Bringing Water to the Mill
Health Column
- Diabeta
- Antibiotics and the Immune Systems
- Salt and Hypertension
- Enzymes and Calcium
- Animals and Allergies

Discussion forum

If you have any questions, concerns or thoughts about cystic fibrosis and would like to share them with adults in the same situation, remember there’s strength in numbers.

The discussion forum is for everyone who is directly or indirectly affected by cystic fibrosis. Our ever growing membership is a sure sign that this forum meets a very real need.

In addition, the forum is user-friendly, making it accessible to all.

You can access it by clicking on the “Forum” link at the top of the page or on the following link: http://www.cpafk.royaume.com

Please note that the discussion forum is available in French only.

Poster (Socio-economic profile)

In 2003, the Adult Cystic Fibrosis Committee of Quebec conducted a study to map out the socio-economic profile of the adult cystic fibrosis population of Quebec.

You can view some of the study’s findings on the poster presented at the 27th European Cystic Fibrosis Conference held in Birmingham, UK, in 2004. Click here.

Summer Schedule

Please note that the offices of the ACFCQ will be closed from July 5 to 23, 2010.

We can be reached every day of the week. The ACFCQ offices are open Monday to Friday, 9:00 a.m. to 5:00 p.m.

You may leave a message in the ACFCQ voice mailbox:
514 288-3157 (Greater Montreal Area)
1 800 315-3157 (elsewhere in Quebec)

or send us an e-mail: info@cpafk.qc.ca

Change of address

If you are moving, please call and let us know :
514 288-3157 (Greater Montreal Area)
or 1 800 315-3157 (elsewhere in Quebec, toll-free).

or send your new adress to:
ACFCQ
629 Prince Arthur Street West
Montreal, Quebec
H2X 1T9
E-mail: info@cpafk.qc.ca

We welcome your comments, so feel free to send them to us.

Information | Communication | Organization | Site Map | French

To contact the ACFCQ: info@cpafk.qc.ca
Send your comments on the site to: webmestre@cpafk.qc.ca